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Cohort profile Cohort profile: Epidemiologic Questionnaire (EPI-Q) – a scalable, app-based health survey linked to electronic health record and genotype data
Maxwell Salvatore1,2orcid , Dylan Clark-Boucher1,2orcid , Lars G Fritsche1,3orcid , Jacob Ortlieb4orcid , Janet Houghtby4orcid , Anisa Driscoll4orcid , Bryanne Caldwell-Larkins4orcid , Jennifer A Smith1,5orcid , Chad M Brummett4orcid , Sachin Kheterpal4,6orcid , Lynda Lisabeth1orcid , Bhramar Mukherjee1,2orcid
Epidemiol Health 2023;e2023074
DOI: https://doi.org/10.4178/epih.e2023074 [Accepted]
Published online: August 8, 2023
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1University of Michigan School of Public Health, Ann Arbor, United States
2University of Michigan Center for Precision Health Data Science, Ann Arbor, United States
3University of Michigan Rogel Cancer Center, Ann Arbor, United States
4University of Michigan Precision Health, Ann Arbor, United States
5University of Michigan Survey Research Center, Ann Arbor, United States
6University of Michigan Department of Anesthesiology, Ann Arbor, United States
Corresponding author:  Bhramar Mukherjee,
Email: bhramar@umich.edu
Received: 31 March 2023   • Revised: 20 June 2023   • Accepted: 3 July 2023
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Abstract

The Epidemiologic Questionnaire (EPI-Q) was established to collect broad, uniform, self-reported health data to supplement electronic health record (EHR) and genotype information from participants in the University of Michigan (UM) Precision Health cohorts. Recruitment of EPI-Q participants, who were already enrolled in 1 of 3 ongoing UM Precision Health cohorts—the Michigan Genomics Initiative, Mental Health Biobank, and Metabolism, Endocrinology, and Diabetes cohorts—began in March 2020. Of 54,043 retrospective invitations, 5,577 individuals enrolled, representing a 10.3% response rate. Of these, 3,502 (63.7%) were female, and the average age was 56.1 years (standard deviation, 15.4 years). The baseline survey comprises 11 modules on topics including personal and family health history, lifestyle, and cancer screening and history. Additionally, 11 optional modules cover topics including financial toxicity, occupational exposure, and life meaning. The questions are based on standardized and validated instruments used in other cohorts, and we share resources to expedite development of similar surveys. Data are collected via the MyDataHelps platform, which enables current and future participants to share non-Michigan Medicine EHR data. Recruitment is ongoing. Cohort data are available to those with institutional review board approval; for details, contact the Data Office for Clinical and Translational Research (DataOffice@umich.edu; (734) 615-2100).

Epidemiol Health : Epidemiology and Health
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